Huskerveil
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11/8/2016 10:35:00 AM
Finding a cure for juvenile dermatomiositus
Hey guys how are you all? This could be a long post so if you decide to read on I thank you, my daughter suffers from a rare incurable condition, juvenile dermatomiositus ( JDM) for short, there's more cases in the u.s than there are the uk, over here in the uk there is only 11 known cases and no research for finding a cure. Is it fatal, potentially it is yes, rather than try to explain there is a good website called curejm.com if you wanted to find out more, there's nothing I can do as a father for Jasmine apart from give her love and support and try and raise money for the team here in the uk keeping her alive and well, whom without she wouldn't be here today, every year I run a music festival called rock 4 Jasmine , you can check it out on Facebook to try and raise funds, after putting my bands song on here ( one by one) and it got an amazing response we decided to release it as a charity single on I tunes, every penny ( or dime in some cases ) goes to the team helping my daughter, I'm not asking you lovely people to buy it, you can all hear it on here for free, I was wondering if people would mind sharing the link on their Facebook pages or Twitter or something briefly explaining why and what for, I'd be eternally grateful as every penny counts and the more we raise the closer we might be to finding a cure xx
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